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Post by tammygirl on Jan 2, 2004 9:49:58 GMT -5
hello my name is tammy and i had a ileostomy done a month ago and having a ruff time adapting to this new kind of life.... i guess i need a little support from people that actually understands the situation im in.... shy smile....
tammy
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Post by KiminCalif on Jan 2, 2004 10:50:36 GMT -5
Hi Tammy! My name is Kim. I live in Fresno, California and I have had an illeostomy since 1999. Happy to meet you! You are going to find it gets easier from where you are now. Ask any questions you have here and we will do our best to answer them or refer you to various links. I am happy you found us. The people here are super! I hope you can join us for the Saturday Chat! It is at 8pm British time or 12 noon California time. See you there! Luv, Kim in Calif  |
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Post by Kathy_from_England on Jan 3, 2004 7:11:26 GMT -5
Hi and welcome Tammy!
A month isn't a long time to get used to an ileostomy...be gentle with yourself, things WILL get better.
Are you having any problems with it that you want to ask us about?
If you want to chat to others the chatroom link is:
www.ostomy.fsnet.co.uk/chat.html
It's open 24/7, but the main chat of the week takes place on Saturdays 8pm UK time.
You may feel overwhelmed right now, but life really does go on after an ileostomy. My husband's was a complete shock to us both but if you were to meet him now you wouldn't know he had a stoma.
Looking forward to getting to know you, Tammy!
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Post by tammygirl on Jan 5, 2004 7:59:17 GMT -5
hey ;D,,,,,,, man..... real people that are having the same adventure..... ;D nice to meet you all..... its sorta getting better,,,, but man it was hell of a time to get to this point..... right now im dealling with a very sore skin around the stoma,,,, really big rash.... anyone have any suggestion,,,,, right now im meeting with a nurse that is helping figure out a way to try to longuer my wear time for my appliance,,,,, for me its only staying 3days,,, and its getting a little expansif,,,, anyways,,,, if anyone has suggesting that i might try.... tammmmy ;D  |
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Post by Kathy_from_England on Jan 5, 2004 13:24:25 GMT -5
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Post by melissa on Jan 18, 2004 0:08:35 GMT -5
Hi I'm Melissa welcome to the board... I had a allergy reaction to the paste I was using. So I stopped using all paste and pre wipes. The rash is completely gone now.
I use a hollistier 1pc appliance with convex barrier. I get 7 days.
Hope you find out the problem soon those skin rashes burn and itch like crazy...
Melissa
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Post by tammygirl on Mar 4, 2004 21:24:06 GMT -5
hey melissa.. smile thank you sooooooooooo very much for telling me about that barrier ring.. i was also having a alergy to the past.... my wear time is up to 8 days/ no more rash // im actually getting alot better with this whole thing... and starting to accept and be happy again... thanks for the suport... i have my life back,... hugs everyone
tammy
miramichi,nb,canada
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Post by Jason_D on Mar 5, 2004 6:13:18 GMT -5
Cool, thats great to hear that everything is going better for you now Tammy. Buh bye now, Jason D. webmaster and colostomist. www.ostomy.fsnet.co.uk |
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Post by shaz on Mar 12, 2004 9:57:01 GMT -5
Hi Tammy I'm Shaz and I've had my ileo for 27 years now since I was 10 years old due to UC. It does take a bit of getting used to (with some mishaps along the way), but as time goes on, you'll get used to it and there will come a day when the only time you think about your ostomy is when you have to empty or change it. Good luck  |
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