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Post by leakybag on Sept 15, 2003 17:20:07 GMT -5
I'm having trouble with my urostomy bag. I can't seem to get the bag to stay on. I apply the paste over the inner part of wafer. I got it to stay on for 3 days. That's a record. It usually lasts 3 hr. to 11 hrs. I'm not able to get it to stay very long. Does anyone know what I might be doing wrong. I stand up and look into a mirrow. This is a hard way of doing it, but the only way to see what I'm doing. I have had this bag for 2 months. I'm getting assistance from the visiting nurses. They said to try a chat room to see how other people are applying their wafers. Thanks for your help, leakybag
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Post by julima on Sept 16, 2003 3:04:59 GMT -5
Hi leakybag, and welcome! I also have a urostomy (mine is an "innie" approx 2" below the surface) and, like you, I had a lot of trouble finding a bag which would stay on for 3 days (which, incidentally, is the maximum recommended for urostomy bags .... after that time bacteria starts to build up and can lead to infection ). You don't say what pouches/paste you are already using, but what eventually worked for me was a Coloplast Assura Seal pouch (convex because of my "innie") with Hollister Adapt paste placed around the opening of the pouch, plus a little extra at known trouble spots (ie dips in the skin). I usually, although not always , get three days wear with this. Many on the message boards swear by Eakin Seals - you can visit their website, look up the distributors for your country, and request a free sample to try. I did this, and fouond they weren't quite as good as the Adapt for me personally, but I think it may be worth a try for you. Here's the address: www.eakin.co.uk/distributors/Hope this helps. Julie XXX
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Post by Kathy_from_England on Sept 16, 2003 12:26:49 GMT -5
Hi and Welcome to the board! Julie's given you some great advice. I've also sent you an IM which I hope helps.
Let us know how you're getting on.
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Post by Bonedry on Nov 26, 2003 18:47:20 GMT -5
Hello, Leakybag. Sorry youv'e been having troubles. I have had my urostomy for 13 months after a cystectomy for cancer. I have been dry for all but the first week. What works for me is Convatec Flanges (S7246) with Convatec Pouches (S7372). Used by themselves, however I remain dry barely 24 hours. The real kicker is the addition of Salts Cohesive Washers! (839002). I use 2 washers with each bag change, applying one washer around the stoma next to my skin and another attached directly to the sticky side of the flange. A firm press, using my finger to trace round the circumfrence of the stoma a couple of times, and I am dry for days on end. In fact since I have learned this technique I have never leaked even if I change my bag only every 4 days or so. Please give it a try if you can. It has made all the difference to me. You have my very best wishes.
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Post by leakybag on Nov 26, 2003 19:21:48 GMT -5
To all that took the trouble to write and share their views on what is helping them, I am most greatful. We all know how alone we seemed to be when this first happens to us. The problems were surmountable. I was so glad to be able to share my problems with you. And when I would get replies I was thrilled. Well after trying many products I ended up with coloplast.12433. It is a single unit bag with wafer attached. I do have to cut my opening in the wafer. It's been staying on for 5 days. I also wear a 6 inch binder with a hole for the bag. This also helps keep the wafer on tight. I seem to have more confidence now and I can go out of the house without having a panic attack that the bag will leak. Thanks again for all your comments. It means a lot to me. Leakybag no long (I hope)
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